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I am an adult living with a primary immune deficiency and this is quite surreal. Dr. Jennifer Puck, on the left in the photo, is my doctor at UCSF. Let me just say that she is an incredible doctor.

I’ve had a vague hope in gene therapy for many years, but have never really believed I would live to see it come to market as a real treatment.

I’ve told my family many times that “maybe gene therapy will be the fix”. Today is the first day I’ve actually believed those words.



Although it may be a first for this specific SCID (X-linked), there are other SCID forms that have successfully been using this gene therapy approach for a little while.


I just wanted to take a moment to wish your friends, family, and you well.


Hope it works out for you!


Very, very happy for you!




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